Page 2The Conformer

ican receives MARHGN Grant

As we announced in the last Conformer, ican was awarded a grant by the Mid-Atlantic Regional Human Genetics Network (MARHGN) to develop an informational brochure about anophthalmia/microphthalmia. Thanks to the support and efforts of the Albert Einstein Medical Center Department of Genetics and their able summer intern, Tanya M. Bardakjian, the first draft of the brochure is completed. The goal of the brochure is to provide brief and accurate information about anophthalmia/microphthalmia and offer resources for individuals to contact to obtain more information and support.

A copy of the brochure is included with this issue of the Conformer for your review. Please send your comments/suggestions to:

Additional copies of the brochure are available by contacting ican at 1-800-580-ican or AEMC at (215)456-8722.

ican Web Page

Through the generous sponsorship of Arthur C. Perry, M.D., Medical Director of Integrated Orbital Implants, INC in San Diego ican has joined the Internet with a Web page. Important ican news printed in the Conformer will be accessible via the Internet in the near future. We are currently working out all of the technical details. Watch out for ican at this WWW address: www.ioi.com/ican. The internet will be a wonderful place for new families to find us.


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