Page 4The Conformer

ican and the anophthalmia/microphthalmia registry have joined efforts to update and streamline our mailing list databases. As a result, ican and the A/M registry hope to be able to process requests for information and inclusion on the mailing list more expediently.

Please contact us if you or someone you know has been previously missed on our mailing list or if you have recently changed your address. Please call 1-800-ican and leave a detailed message on the voicemail.





The Bulletin Board

1) An abstract about anophthalmia/microphthalmia was accepted as a poster presentation for the National Society of Genetic Counselors meeting in October, 1996 in San Francisco. The poster will discuss different individuals with A/M and serve to better inform the genetic counseling community about A/M. This exposure will help spread information about A/M and ican.

2) Unfortunately, there will not be a family picnic held this September. However, plans are in the making for an educational/entertaining day the end of October. We will let you know the final details soon. Thanks for your patience.

3) The A/M registry at AEMC is constantly growing with more and more responses coming in. We have about 20 responses from all over the world, including Australia, Japan, and Canada, thus far, and are hoping for many more. We have noticed some common threads of issues, concerns and medical problems among the responses. If you haven't returned your registry or wish to receive one, please call (215) 456-8722.


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